Lorena Burriel

Independence depends on the world around us

Determination helps, but autonomy also depends on transport, work, money and support that leaves the person in control.

We like stories about independence with one determined person at the centre. They work harder, refuse help and overcome whatever is in front of them.

I find that version too convenient. It lets the world around them off the hook.

The same person can be independent in one place and completely dependent in another. The difference may be a reliable train, an unlocked entrance, a flexible employer or enough money to choose an alternative.

Help does not cancel choice

Independence cannot mean doing every task without another person. Nobody lives like that. What matters is who decides, how much control they keep and whether the support fits around their life.

Help becomes a problem when poor design makes it necessary or when the helper takes over the decision.

An unreliable lift can turn a short journey into an operation that needs advance planning. A workplace with no flexibility can make professional progress depend on one sympathetic manager. A hotel may call a room accessible while requiring a member of staff to open every important door. The guest is welcome, but only on somebody else’s timetable.

Money belongs in this conversation

Accessibility is often discussed through buildings and services. Work and money receive less attention, even though they shape almost every choice a person can make.

An income affects where you live, how you travel and whether you can leave a relationship that is no longer right. It changes which risks are possible. Barriers at school or work do not stay at school or work.

If we care about independence, we have to care about the routes into a career and the chance to progress once somebody is there.

Who controls the timetable?

The presence of support tells me very little on its own. I want to know whether the person using it still controls the day.

Can they arrive when they choose? Do they have to wait for a keyholder? Can they sit with their colleagues? At work, are they allowed to build a career, or are they expected to stay grateful for having been included at all?

We all rely on other people and on systems we rarely notice. Independence is about whether those systems leave room for a life of your own. Too often, disabled people still have to negotiate for that room day after day.